moments of happiness take me by surprise.
not often enough do i step back from life’s distractions to enjoy what is going on around me. the flowers springing from the ground. the smell of clean sheets, the kindness of strangers.
most of all i forget to sit back and watch my children interact. finding joy in one another. most of all loving each other.
this past sunday i had one of those happy moments. between running up and down stairs looking for clean church clothes for everyone (i know i procrastinate) i walked past the guest room and saw miss reese lying on the bed. at first glance she looked alone. then i heard someone else in the room. i stopped by the door to listen. i was taken back when i realized it was dallin. he had not yet found any interest in reese and here he was alone with her. lying next to her. not for the camera, just to be there. i quietly listened, “everything is going to be okay. i know you can hear me...”
the camera was in my room, only steps away. so a quick sprint down and back gave me a chance to snap this moment.
……….
we have been fasting and praying for reese. she has had a series of tests on her ears. she hasn’t passed any of them.
her last test was yesterday. going into it jon and i had such a reassuring feeling that she was responding to noise. unfortunately, she didn’t pass and was diagnosed with a severe to profound hearing loss.
gulp.
{knife to the heart}
the news is hard to swallow. a sad moment in my life. oh, my little perfect girl. alexander’s condition is so rare, we were told that there was almost no chance that it would happen again.
to say that it was a waste of time and energy to fast and pray is not possible. since the last failed test 3 weeks ago we have been comforted. not an ounce of sadness or worry filled our hearts during that time. we have been able to go day to day without the heavy burden of raising another deaf child. looks like we will have to keep going.
we are on the same path we found ourselves on 3 years ago. the good thing is, we know what to do next.
reese, you have a very kind and wise older brother always looking out for you, and talking to you. he is right, you can hear him, through your heart…
…for now that is.
That is the sweetest story of D and R. How sweet and cute. He does really care for his baby sister. He has said stuff in Sunday School (on occassion), but is smittened by her. He is just too cool to show it.
ReplyDeleteMy heart and prayers go out to you. I know you will overcome and be an inspiration to many more through this, but just wanted to know that you are loved and will always be cared for when you need it.
your kids are so cute! thinking of you at this difficult time. i can't imagine what you guys must be going through. i hope you continue to feel comforted and at peace through the trials that are ahead.
ReplyDeleteHow sweet. I'm sorry to hear about your sweet baby girl but full of joy because of Alexander's success and what you said, you know what to do next. You are in our prayers.
ReplyDeleteGulp - lump in my throat too. What a sweet experience to have Dallin say those things to her. (And it sure LOOKS like she's hearing him!!)
ReplyDeleteShe's beautiful and will have you to fight the fight and she'll be as amazing as Alex.
XOXO
Dear Monica and Jon
ReplyDeleteWhat a beautiful family you have. I love reading about them and seeing the beautiful pictures you take. That is a precious picture of Dallin and Reese.
We are so sorry about Reese's hearing test. We are thinking about you all. May everything go well for you in the upcoming months.
See you soon. I want to hold that little girl in my arms.
Love,
Aunt Carolyn
We are excited to see you soon, too. Reese is so beautiful. We are all praying for the best for her.
ReplyDeleteLove,
Auntie JoAnn
i'm so sorry. we will keep you guys in our prayers. i hope you continue to feel peace and comfort. she is so sweet!
ReplyDeletewhat a beautiful post and inspired perspective! i know you felt peaceful because it really is going to all be okay. YOU of all parents are well-prepared to help Reese through this and the bond that she will have with Alexander {and with all her big brothers that already know from experience that she WILL be able to hear} will be incredible! nothing makes a family stronger or closer than these difficult but deeply sacred challenges that draw our attention to the things of eternal importance! you are amazing! you are in our hearts and prayers!
ReplyDeleteI have a friend with a disabled child. When he was born, many people told her that God gave her that baby because she could handle a child with a disablilty. She said that was baloney. She could not believe that God would dole out special needs kids to the parents "who could handle it". She believed, rather, that God would give her, and other parents who have children with special needs, or who become ill, or who are injured in an accident, or who make poor choices, the strength to deal with it. God--and your family and friends--will give you the strength to help your sweet baby thrive, whatever her outcome is. Know that you are loved by so many.
ReplyDeleteThat picture of Reese and Dallin is the most precious picture!! What a special memory to have. I am so sorry to hear about the hearing tests. I will be praying for her and your family as well!
ReplyDeleteSuch a beautiful post Monica. That photo of Dallin and Reese is so sweet and the story that goes with it brought tears to my eyes. What a great big brother. Like you said, Reese can hear him...and some day it will be with her ears, just like her older brother. Your an amazing mother who knows exactly what Reese needs and how to get it for her. I hope you're able to feel peace as you begin this new journey. I'm thinking about you and praying for all of you. Looking forward to getting together soon.
ReplyDeleteThat is hard news to swallow. Two times. My heart goes out to you! What a special bond Alex and Reese will have. You are an amazing mother and the resurrection will be all the more exciting for your beautiful kids.
ReplyDeleteThat is so sweet- Reese and Dallin. You have been in our prayers. We love you all.
ReplyDeleteThat picture is so tender. I am so sorry to hear about Reese's hearing loss. What a surprise. Lucky for her, you know exactly how to handle it. Hang in there.
ReplyDeleteoh monica... i am sure that was so hard to hear. she is so perfect.
ReplyDeletewhat a sweet moment and what sweet boys you have.
good luck with whatever reese may need.
What a sweet moment to stumble upon, I am so very sorry to hear about Reese's loss of hearing. You have a beautiful family
ReplyDeleteWhat a sweet sweet post, and it gave me tears in my eyes. It's got to be so hard, and I'm sorry. But at the same time, you are both wonderful parents and she has so much love. What a sweet story of your two kids on the bed.....so touching. Hang in there.
ReplyDeleteMy dear Jonathan and Monica - Reese is so blessed to have come to YOUR home - to parents who care and love and give their "all" to make their lives special every day. You are constantly in my prayers and I KNOW that Reese will be OK - just like Alexander -happy and healthy and well prepared.Blessings on each of you.
ReplyDeleteHONEY and (PPJ)
Monica,
ReplyDeleteI am so sorry to hear about Reese's hearing...I am in tears! My thoughts and prayers are with you and your family. But you are right, you do know what to do. :) And she'll always hear Dallin whether it be through her ears or her heart. She knows you are all there and love her. That is such a precious picture.
xoxo
michelle
such a beautiful picture. seriously. and such beautiful thoughts.
ReplyDelete